This is a hard post to write. So forgive me if it lacks cohesiveness.
Over the last few days Kevin was showing several signs that he was very slowly improving. He was eating more, staying awake more, a bit more conversational, stronger too. So, this morning when he said he wasn’t feeling well and wanted to go to the doctor sooner than their scheduled 10:00 am appointment, I wasn’t overly worried.
Unfortunately, when they went to his oncologist’s office to have his blood levels tested, the news was not what we had expected. While his hemoglobin (red blood cells) and white blood cells were slightly improved from Friday, his platelets were worse. His docs believe that Kevin’s platelets are not likely to recover as his liver continues to struggle (which is causing his spleen to be enlarged) and doesn’t appear to be recovering function. They have made it clear that from their perspective, there are no treatment options remaining, and that he is likely to continue needing platelet transfusions.
Rachel and Kevin talked in depth about this news, what it really meant, and what to do from here. They decided to go ahead with the planned interventional radiology procedure to replace his leaking drain (again!) and to also ask the I/R doctor to see if he could do anything else to help while he was in there. He will possibly perform a paracentesis procedure to drain off some of the excess fluid that has been building up in his abdomen and causing discomfort, trouble breathing, and loss of appetite. Their oncology team said this procedure would not help liver function at all, but the I/R doctor said that it could. He’s also going to have a look at the spleen and see what’s going on.
For now, the plan remains the same: Keep checking labs and getting platelets when needed, and then continue with trying to get him to eat as much as possible, rest as much as possible and pray that the Lord grants them a miracle – either to heal him or to bring him Home as quickly and painlessly as possible.
There’s many many more details surrounding all of this but either they are too confusing or they aren’t really relevant. Rachel is doing better than she or I expected. They’ve known the poor prognosis from the beginning, and have had two years to prepare for this. But can you ever really be prepared?
I’m doing about how I expected. We are both ok. God (and our parents) made us problem solvers / trouble shooters / planners so we are busying ourselves in the necessary details. It helps us cope, and feel helpful and useful – its one of the many amazing traits my sister possesses that has allowed her to support and help and in some cases save Kevin over the last 2 years. Even as I write this, she is emailing his other doctors that he has seen across the country to see if any of them have any ideas.
For those who don’t know her – she is a ball of determination and passionate love for her husband and the Lord. She is smart, funny, resourceful and very transparent. All of which makes reading her writings so poignant, and funny and honest. I know that regardless of the direction their path takes, the Lord will use these traits and the ways He made her to carry her through.
Please pray. There are always the ‘ifs’ in every situation, and God can use one of those to make a way for Kevin to recover. And then, of course, the Lord is a God of miracles and should He choose to, He can miraculously heal Kevin as well. But if He chooses not to heal Kevin this side of heaven, we pray he makes this as painless and quick as possible. Pray y’all. Please Lord, have mercy.