We met with my surgeon today and received what we’re calling “qualified good news”. First off, let me just say that my surgeon is an amazing human being. Besides being one of the best-of-the-best surgeons, he has the perfect personality for us. He cares deeply, but gets straight to the point and tells it like it is (no BS). He immediately told us that my liver was NOT full of cancer and I would NOT need major surgery on my liver. I do have a tumor on my liver, but it is not the greatest cause for concern at the moment. The problem now, is a tumor in a lymph node blocking my liver outflow ability. This is very serious, but treatable. He had already conferred with my other Emory docs and my UCLA doc, and they all agree that putting in a bile duct stent will solve the immediate issue. This will be scheduled for tomorrow or Friday (2/1) at Emory. The reason we call this “qualified good news” is that we are still unsure if my doctors at the NIH will allow me back on the clinical trial for TIL therapy (a.k.a Adoptive Cell Therapy). There are reasons for this of course, they’re not just being difficult. The stent has a risk of infection and TIL therapy (a.k.a Adoptive Cell Therapy) will put me at even greater risk of infection so they are considering this carefully. As a great thinker once said: “this is not ‘Nam, this is bowling, there are rules”.
So we don’t know anything beyond this week, and we are starting to learn to live like this regardless of the news (sortof).
A prayer sent to me from another amazing person awhile back…
From Celltic Daily Prayer Book
The Boisil Compline
Boisil, Prior of Melrose Abbey, died 661 BCE
I am placing my soul and my body
in Thy safe keeping this night, O God,
in Thy safe keeping, O Jesus Christ,
in Thy safe keeping, O Spirit of perfect truth.
The Three who would defend my cause
be keeping me this night from harm.
I call on You, O God,
For You will answer me;
Give ear to me and hear my prayer.
Show the wonder of Your great love,
You who save by Your right hand
those who take refuge in You from their foes.
Keep me as a apple of Your eye;
hide me in the shadow of Your wings.
Did I just put a prayer and The Big Lebowski in the same post?… I think I just did #thatcantbegood